Just a quick hello as I pop by.
Feel awful, truly bloody awful today. Maybe it is because we had a busy time last week with lots of end of term school events, maybe it’s just a random crappy parathyroid day. I made a decision not to go on about my symptoms to my nearest and dearest so can I have a whinge please?
I hurt all over, muscles and joints feel like I have the flu. Head is whizzy, hands and feet tingly, brain not functioning. Tearful and exhausted, fingers and ankles are swollen, back is killing me. Sat down on some grass yesterday at sports day and took 2 people to get me up as I didn’t have the strength in my weak old legs to get up again. Weight creeping up due to inactivity, house falling apart from lack of TLC and kids having to fend for themselves too much. Acid reflux, weeing for England, blurred vision and double vision worse…
Come round quickly August, I’ve have enough of this now!
Whinge away girl…. I feel so sorry for you, knowing just how rotten it feels from the inside. xxxxxI wish I were closer and could give you a cuddle and some kind of useful support. Your lads will remember how hard you fought to keep going for them. It is such a pig this disease, to all intents and purposes you look “normal”, people really start to think you are a lazy person. Fighting to do some-thing like getting up from the grass, becomes embarrassing doesn’t it. xxxxxx you are nearly there lass, won’t be too long now. I think of you often xxxxx
Bless you Claire. I’ve been thinking of you every day & feeling for your predicament.
As Ann says, we all understand only too well how this rotten condition depletes you. You can’t expect to keep you spirits up all the time when calcium levels are fluctuating and sending mixed messages around your body. People might think you should feel ‘used to it’ by now – but how can you be, when the condition changes all the time?? Different crap in various forms.. It’s enough to send you schitzo!!!!
..but you ARE in the home strait now…only just over 5 weeks to go now. It’s a bit like running a marathon, and the last bit is tough. Go really easy on yourself now. Shelve all stress that you don’t HAVE to confront & get as much rest as possible.
We will be willing you on. Definitely use us for a whinge….. it’s what we’re here for!! XXX
Don’t know why my post (above) says anonymous?? It’s me, Ashleigh!! XX
I think we can all empathise with each other. My pain seems to be under control at the moment, just dull rather than excessive, but the tiredness is unbelieveable. I have a date for my mibi scan which is 15th August. I’m wishing the days away until you have your operation. I’m hoping it frees you of all your aches and pains and ‘foggy head’. Will you change your blog name when you’ve recovered?
I don’t know about you but I’m so hoping that the operation is going to be the answer to all my problems. I dread to think, ‘what if it doesn’t work and my symptoms are due to something else?
Hang in there. We’re all with you.
Let us know how the scan goes – I was so disappointed when they found nothing on mine but I feel reassured now that at least it showed them where it was not. I was lucky that my doctors were clued up enough to know this was only to help with location and not a diagnostic tool, I read so many reports of a negative scan delaying treatment for people.
The tiredness is so all consuming sometimes isn’t it? I find it hard to explain, just tired beyond anything – horrid and unpleasant. I too cling onto the hope that the op will take all this away, I am confident it will but there are odd darker days when I ponder on what if.. but not allowing myself to be negative!! We are almost there – keep in touch with how things are going your end xx
Only a month to go now – the winning post is in site!!! xxx
^^^ er.. Anonymous Ashleigh again!! x ^^^
Hi Ashleigh! Thank you lovely lady xx